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Nepean Neonatal Intensive Care Unit Parents Support
(NNICUPS)     Reg Charity No CC29534
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Foundation & Achievement

Nepean Neonatal Intensive Care Unit Parent Support - NNICUPS - was formed in March 1992, an initiative of Julie Clarke, the mother of a 27 week premature baby (13 weeks early) who was born in York, England. Julie had formed a similar group at York District Hospital in 1984.

With the support and enthusiasm of the Neonatologists and nursing staff of Nepean Hospital's unit, five mothers of premature and sick babies were invited to be the founder members.
Nepean Hospital
Nepean Hospital
The aim of NNICUPS is to help alleviate the anxiety and trauma of parents who have a baby being cared for in the Neonatal Intensive Care Unit, by providing emotional and practical support.

Parents of these newborn babies need to be reassured that the feelings of fear of death, guilt and fear of becoming too attached to their baby are normal, but only someone who has experienced these anxieties can truly empathise. It's often easier to confide in a stranger, as other family members will also have feelings of anguish.
mel_hayden_ryan.jpg - Melissa - Hayden - Ryan
Melissa - Hayden - Ryan
linda_daniel.jpg - Linda - Daniel
Linda - Daniel
Linda and Melissa are both NNICUPS Group mums.
Achievements Over The Years
Parent Support Group -

To many members this is the most important role of NNICUPS. A roster of suitable, willing volunteers is kept in the Unit. The staff offer this service to new parents and ask a "parent" with a similar experience to talk to them. Parent volunteers have no formal training. These parents are there to listen as caring / supportive parents only.

Explanatory Booklet -

This booklet was one of NNICUPS first priorities and was written and published in 1994 by members of NNICUPS and that staff at the Unit. It was funded by the Wentworth Area Health Service.
The "Parents' Booklet" was updated in 2004 and funded by Mr Colin Parras, staff and patrons of the Peachtree Inn Hotel, Penrith and NNICUPS.

NNICUPS Booklet
NNICUPS Parents Booklet
Fundraising -

Funds have been raised to provide practical support to parents and some equipment for the Unit.

Initial funds were used to buy six electric breast pumps. These are lent to mothers to take home until the baby is able to be breastfed. It's often the only contribution a mother feels she can make. These are constantly in use and have been replaced over the years.

Parents' sitting and breastfeeding rooms have been furnished by NNICUPS. TVs, a videos and toys for siblings, microwaves and double beds have all helped to make the parents' area a little more like home, making this traumatic experience a little more bearable.

Hope Cottage -

The urgent need for assisted accommodation for families from afar was recognised as one of NNICUPS' priorities.

In 1993, McDonalds was approached by NNICUPS to build a Ronald McDonald House, however, as cancer patients were also in need this faculty it did not fall within their criteria.

Our McDonalds contact, John Tourish, was president of the the Penrith Rotary Club at that time and suggested they take up the cause. After 9 years of fundraising and meeting the demands of building a residential facility on Gonvernment land a dream has finally become reality.

Hope Cottage has been a fully functional residential facility since May 2005. With the help of many contractors, Hope Cottage, a $1.4m project was built for just over &$900,000.

Hope Cottage - Penrith
Hope Cottage

Chairman of The Cottage Trust, Frank Portelli said "we are indebted to these organisations for sharing our vision and providing us with skills and materials to make our dream a reality. To the many groups and individuals who have donated money to the fund, we also thank you for without your contributions we would not have completed the project.

As Rotary International celebrates its 100th year of Community Service, Hope Cottage is the joint Centennial project of the Rotary Clubs of Nepean, Penrith and Penrith Valley and our gift to the people of Penrith and country New South Wales who will be able to use this wonderful facililty".NNICUPS is very proud to have supported and contributed to this major project.
Newsletter -

A quarterly newsletter is sent to members and it is available to all parents.

NNICUPS Newsletter
NNICUPS Newsletter
The Future -

It is a credit to the staff of Nepean's NICU, particularly Dr. Lyn Downe and Sister Irene Wong, and the parents who have "graduated" from the Unit, that NNICUPS is a thriving, local charity.

NNICUPS is one of the few neonatal support groups in Australia and is proud to have given so much to the Wentworth Area over the last 15 years. It has certainly achieved its aims and continues to support an ever increasing number of parents whose babies are born needing the care of the dedicated team at Nepean Hospital's Neonatal Intensive Care Unit.



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